Privacy Policy

General Statement

This Privacy Policy ("Privacy Policy") discloses the privacy practices for the National Minority Clinical Research Association (NMCRA) Network (collectively the "National Minority Clinical Research Association (NMCRA) Network ") with regard to your ("You" or "Your") use of the website (www.nmcra.org) (the "Site" or "Sites"). The National Minority Clinical Research Association (NMCRA) Network is committed to Your privacy. The National Minority Clinical Research Association (NMCRA) Network hereby notifies You of the following:

What personally identifiable information is collected from You through this Site.

How the information is used.
How the information may be shared.
How The National Minority Clinical Research Association (NMCRA) Network protects Your information.
How You can seek to correct any inaccuracies in the information.
What contact address for the National Minority Clinical Research Association (NMCRA) Network should be used for privacy related questions?

1. What Personally Identifiable Information Of Yours Is Collected

a. Information collection and use

The National Minority Clinical Research Association (NMCRA) Network is the sole owner of the information collected on this Site. We will not sell, share, transfer or rent any personal information to others in ways different from what is disclosed in this statement. The National Minority Clinical Research Association (NMCRA) Network collects information from You on the Profile and Registration pages ("Profile pages") on our Site. The National Minority Clinical Research Association (NMCRA) Network reserves the right to collect, disseminate, sell or otherwise disclose non-personal information provided by You.

b. Registration

During the collection of information at the Profile pages on the Site, You are required to give your contact information (such as name, address, birth date year, medical school, institutional affiliations, e-mail address and the like). An e-mail address and birth date year is used to confirm Your identity. An email address is also used to contact You about the materials and information on the Site. When the Site requests Your identity, the Site will clearly indicate the purpose of the inquiry before the information is requested. All of your professional information will be authenticated against a third party provider.

c. Personal Profile

Once a registered participant, You may provide additional information in Your personal profile describing your credentials, professional experiences, academic background, biography and the like. Your personal profile shall be available for viewing by other registered participants of the National Minority Clinical Research Association (NMCRA) Network and will be considered non-confidential and non-proprietary. Providing additional information in Your personal profile beyond what is required at registration is entirely optional and can be altered or removed by You at any time.

d. IP Addresses

Every computer connected to the Internet is given a domain name and a set of numbers that serve as that computer's Internet Protocol or "IP" address. When You request a page from any page within the Site, our Web servers automatically recognize Your domain name and IP address. The domain name and IP address reveal nothing personal about You other than the IP address from which You have accessed the Site.

e. Children's and Minor's Privacy

The National Minority Clinical Research Association (NMCRA) Network strongly encourages parents and guardians to supervise the online activities of their minor children and consider using parental control tools available from online services and software manufacturers to help provide a child-friendly online environment. These tools also can prevent minors from disclosing their name, address, and other personally identifiable information online without parental permission. Although the Site is not intended for use by minors, the National Minority Clinical Research Association (NMCRA) Network respects the privacy of minors who may inadvertently use the Internet.

f. Opt Out Procedures

Upon initial communication from the National Minority Clinical Research Association (NMCRA) Network, You may opt-out of the National Minority Clinical Research Association (NMCRA) Network. To be completely removed from the National Minority Clinical Research Association (NMCRA) Network mailing list, You may contact Theresa.McGhee@nmcra.org. If You are using an e-mail forwarding service or other similar service please make sure to include the correct e-mail address or addresses.

2. How The Information Is Used

a. Use of Personal Health Information

The National Minority Clinical Research Association (NMCRA) Network does not collect personal health information about individuals. To submit a posting, You must provide and submit information to the National Minority Clinical Research Association (NMCRA) Network server. Within Your uploaded submission, the National Minority Clinical Research Association (NMCRA) Network does not collect or maintain information that would associate this submission with a specific patient or individual.

The Health Insurance Portability and Accountability Act of 1996 (HIPAA) privacy rule, which took effect on April 14, 2003, allows for the use of de-identified health information so long as identifiers have been "stripped" and a key is not disclosed that would allow the information to be re-identified. The National Minority Clinical Research Association (NMCRA) Network does not possess a key to re-identify patient data.

b. Sale of Assets, Merger, Acquisition, Bankruptcy

Information collected from You may be transferred to a third party as a result of a sale or acquisition, merger or bankruptcy involving the National Minority Clinical Research Association (NMCRA) Network.

c. Cookies

A cookie is a small piece of data that is sent to Your browser from a Web server and stored on Your computer's hard drive. A cookie cannot read data off Your hard disk or read cookie files created by other sites. Use of a cookie is in no way linked to any personally identifiable information while on the Site. Once You close Your browser, the cookie simply terminates. For instance, by setting a cookie on the Site, You would not have to log in a password more than once, thereby saving time while on the Site. You can choose whether to accept cookies by changing the settings of Your browser. You can reset your Browser to refuse all cookies or allow Your browser to show You when a cookie is being sent. If You reject the cookies on the Site, You may still be able to use the Site, but it shall be limited to certain minimal functionality. The only drawback to this is that the user may be limited in some areas of our Site or limited to certain functions of the Site. Some of our business partners may use cookies on our Site. However, we have no access to or control over these cookies. The National Minority Clinical Research Association (NMCRA) Network and our business partners may use cookies to better personalize the content, banners, and promotions that You see on the Site.

d. Log Files

The National Minority Clinical Research Association (NMCRA) Network may use IP addresses to analyze trends, administer the Site, track Your movement, and gather broad demographic information for aggregate use.

3. How Information May Be Shared

a. Sharing

The National Minority Clinical Research Association (NMCRA) Network may share aggregated demographic information with the National Minority Clinical Research Association (NMCRA) Network partners. This is not linked to any personal information that can identify any individual person. The National Minority Clinical Research Association (NMCRA) Network shall not be liable for the transfer of any personal identification information resulting from loss or distribution of data, the delineation or corruption of storage media, power failures, natural phenomena, riots, acts of vandalism, sabotage, terrorism or any other event beyond the National Minority Clinical Research Association (NMCRA) Network’s control.

b. Consulting

The National Minority Clinical Research Association (NMCRA) Network may partner with another party to provide specific services. When You sign up for these services, the National Minority Clinical Research Association (NMCRA) Network will share names, or other contact information that is necessary for the third party to provide these services. Per The National Minority Clinical Research Association (NMCRA) Network’s contractual arrangements with parties, these parties are not allowed to use personally identifiable information except for the explicit purpose of providing these services.

c. Spam

The National Minority Clinical Research Association (NMCRA) Network maintains a strict "No-Spam" policy, which means that the National Minority Clinical Research Association (NMCRA) Network does not intend to sell, rent or otherwise give your e-mail address to a third party without Your consent.

d. Legal Requests

The National Minority Clinical Research Association (NMCRA) Network cooperates with law enforcement inquiries, as well as other third parties, to enforce laws and third party rights, such as intellectual property rights and laws relating to fraud. Therefore, in response to a verified request by law enforcement or other government officials relating to a criminal investigation or alleged illegal activity, or other activity that may expose us or you to legal liability, the National Minority Clinical Research Association (NMCRA) Network can (and You authorize the National Minority Clinical Research Association (NMCRA) Network to) disclose Your personal data and other information about You as the National Minority Clinical Research Association (NMCRA) Network, in its sole discretion, believes necessary or appropriate.

e. Forums Including Posts, Discussion Boards and Viewpoint Comments

When you participate in a www.nmcra.org Forum including, but not limited to, Message Boards, Surveys, and Viewpoint Comments, Your name or alias and IP address may be recorded for purposes of maintaining Your own account within the Forums and preventing abuses of the forum (see forum or online community rules for more details). This information is not used to monitor Your activity within a forum, nor is it used to identify You outside www.nmcra.org in any way. In order to diffuse the information in the Site's Forums to a wider audience, the National Minority Clinical Research Association (NMCRA) Network may, from time to time, collect some of Your postings and group them together to use in a specific publication, print, electronic mailing or other public dissemination. At no point however will Your name, alias or IP address be revealed in any publication. In addition, when Your postings are used in this fashion, they may be edited to fit with the general content of the publication being prepared. It is important to remember that whenever You voluntarily disclose personal information in a forum, through e-mail or elsewhere, that information can be collected and used by others. If Your personal information is accessible to the public, You may receive unsolicited messages from other parties in return. Ultimately, You are solely responsible for maintaining the secrecy of Your personal information. You may participate in any Forums offered through the National Minority Clinical Research Association (NMCRA) Network, but You agree not to post any material the content of which (i) is defamatory, libelous, obscene, indecent, abusive, threatening to others, or in violation of any law; or (ii) infringes the copyright, trademark right, or other intellectual property right of any third party. You will be solely responsible for all content that you post on any Forum of the National Minority Clinical Research Association (NMCRA) Network. You agree to indemnify the National Minority Clinical Research Association (NMCRA) Network and its officers and employees from and against all liabilities, judgments, damages, and costs (including attorney's fees) incurred by any of them which arise out of or are related to the content that you post. Forums are intended only for the personal use of the National Minority Clinical Research Association (NMCRA) Network subscribers, and may not be used for commercial purposes or for organized political activity.

4. How We Protect Your Information

a. Confidentiality and Security

The National Minority Clinical Research Association (NMCRA) Network takes all necessary precautions to protect Your personal information both online and off-line. When the National Minority Clinical Research Association (NMCRA) Network requests that You enter sensitive information, that information is encrypted using Secure Sockets Layer (SSL) software or other security protocol, which encrypts the information you input. No administrator at the National Minority Clinical Research Association (NMCRA) Network will have knowledge of Your password. It is important for you to protect against unauthorized access to your password and to your computer. Be sure to log off from the National Minority Clinical Research Association (NMCRA) Network when finished using a shared computer. The National Minority Clinical Research Association (NMCRA) Network also protects Your personal information off-line. Access to Your personal information is limited to employees who the National Minority Clinical Research Association (NMCRA) Network reasonably believes will need that information to provide services to You. However, the National Minority Clinical Research Association (NMCRA) Network is not responsible for the confidentiality, security or distribution of your own personal information by our partners and third parties outside the scope of our agreement with such partners and third parties.

b. Links

The Sites, www.nmcra.org, may contain links to other sites. The linked sites are not necessarily under the control of the National Minority Clinical Research Association (NMCRA) Network. Please be aware that The National Minority Clinical Research Association (NMCRA) Network is not responsible for the privacy practices of such other sites. The National Minority Clinical Research Association (NMCRA) Network encourages You to be aware when You leave this Site and to read the privacy policies of each and every web site that collects personally identifiable information. If You decide to access any of the third-party sites linked to this Site, You do this entirely at Your own risk. Any links to any partner of the Site should be the responsibility of the linking party, and the National Minority Clinical Research Association (NMCRA) Network shall not be responsible for notification of any change in name or location of any information on the Site.

5. Correcting Inaccuracies

a. Correction/Updating Personal Information

If Your personally identifiable information changes (such as address or payment information), or if You no longer desire to use this Site, You can update Your profile on the Profile pages of the Site. The National Minority Clinical Research Association (NMCRA) Network will endeavor to correct, update or remove Your personal data provided to The National Minority Clinical Research Association (NMCRA) Network.

b. Notification of Changes

If the National Minority Clinical Research Association (NMCRA) Network decides to change the Privacy Policy for this Site, the National Minority Clinical Research Association (NMCRA) Network will post those changes on www.nmcra.org so You are always aware of what information The National Minority Clinical Research Association (NMCRA) Network collects, how the National Minority Clinical Research Association (NMCRA) Network uses it, and under what circumstances, if any, the National Minority Clinical Research Association (NMCRA) Network discloses it. If at any point the National Minority Clinical Research Association (NMCRA) Network decides to use personally identifiable information in a manner different from that stated at the time it was collected, the National Minority Clinical Research Association (NMCRA) Network will notify users by way of an e-mail. If You have provided personally identifiable information before the changes in the National Minority Clinical Research Association (NMCRA) Network Privacy Policy, You will have a choice as to whether or not the National Minority Clinical Research Association (NMCRA) Network uses Your information in this different manner. If You choose that the National Minority Clinical Research Association (NMCRA) Network not use Your personally identifiable information in accordance with the new privacy policy, the National Minority Clinical Research Association (NMCRA) Network will use information in accordance with the privacy policy under which the information was originally collected.

c. Site and Service Updates

As necessary, the National Minority Clinical Research Association (NMCRA) Network may send You Site and service announcement updates. You are not able to un-subscribe from service announcements, which contain important information about the Site. The National Minority Clinical Research Association (NMCRA) Network communicates via e-mail with You to provide requested services and to resolve issues relating to Your accounts.

d. Consent to This Policy

The Terms of Use Agreement is incorporated herein by reference in its entirety.

6. What Is The National Minority Clinical Research Association (NMCRA) Network’s Contact Address For Privacy Questions

Should You have questions about this policy or the National Minority Clinical Research Association (NMCRA) Network’s information collection, use and disclosure practices, you may contact us at info.nmcra.org or the National Minority Clinical Research Association (NMCRA) Network, 165 Passaic Avenue, Suite 105; Fairfield, NJ 07004. We will use reasonable efforts to respond promptly to requests, questions or concerns You may have regarding our use of personal information about You. Except where required by law, the National Minority Clinical Research Association (NMCRA) Network cannot ensure a response to questions or comments regarding topics unrelated to this policy or the National Minority Clinical Research Association (NMCRA) Network’s privacy practices.